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Patients struggle to afford new drug for muscular atrophy

Al Jazeera, 10 May 2021
Today is Mila Marzouk's first birthday, but it is unlikely she will see her second unless her parents can find more than $2m.
Mila has skeletal muscular atrophy, a genetic disease that affects more than 10,000 babies every year.
A new drug can save them, but in most places, it is not funded.

Al Jazeera's Charlotte Bellis reports.

Ayah Lundt - https://helpayah.dk/EN/index.html

Mila Marzouk - https://www.gofundme.com/f/baby-health-fundraiser?utm_campaign=p_cp+share-sheet&utm_medium=copy_link_all&utm_source=customer

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#Zolgensma #SpinalMuscularAtrophy #SMA
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